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Calling for an EU action plan on rare diseases
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Calling for an EU action plan on rare diseases

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Rare diseases impact 8% of the EU population, or 36 million Europeans. With 7 000 rare diseases, most of which are chronic, disabling or life-threatening, the health and quality of life for those affected are severely compromised. Worse yet, up to 95% of these diseases lack specific treatments, and the available therapies come at exorbitant costs. This series of fact sheets aims to show our impact on EU legislation, where we brought essential civil society issues to the EU or where we established ourselves as key players.
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ISBN 978-92-830-6661-3
DOI 10.2864/1966064
Katalogo numeris QE-01-24-020-EN-N
ISBN 978-92-830-6662-0
DOI 10.2864/3546657
Katalogo numeris QE-01-24-020-EN-C
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ISSN ISBN 978-92-830-6661-3 DOI 10.2864/1966064 Katalogo numeris QE-01-24-020-EN-N
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ISSN ISBN 978-92-830-6662-0 DOI 10.2864/3546657 Katalogo numeris QE-01-24-020-EN-C
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